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Rare Sounds, Poetry by people living with rare diseases
EAN13
9782384271269
Éditeur
Fondation Ipsen BookLab
Date de publication
Langue
anglais
Fiches UNIMARC
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Rare Sounds

Poetry by people living with rare diseases

Fondation Ipsen BookLab

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The voices of millions of people, many children, living with rare diseases are
often unheard. People living with rare diseases are silenced through stigma
and discrimination. Poetry gives its writers power through self-expression. In
this magnificent project, Dr Ramamoorthi teaches people who would otherwise be
silenced to express themselves through poetry. By teaching poetry as a method
of self-expression, the teacher gives voices to the silent. Not only are the
poems eye-opening and heartrending, but this book includes a teaching guide so
that the method is scalable. I wish for a world where people are valued for
who they are and not for what they appear; this beautiful collection of poetry
takes us one step closer.

James A. Levine, MD, PhD, Professor
President, Fondation Ipsen


ABOUT THE AUTHOR

Roopa Ramamoorthi, is a scientist and published poet as well as Director for
the Catalyst and InVent Fund at UCSF. Her essays, poetry and short stories
have appeared in over 80 publications including various anthologies,
perspectives on NPR and she has been featured at former San Francisco poet
laureate Kim Shuck’s poetry events. She feels honored to have conducted the
poetry workshops with people living with rare diseases and to help send their
voices out into the world.
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